At the Johns Hopkins Berman Institute of Bioethics there is a vision of hope.
Specific to Sickle Cell, there is the VISION OF HOPE: INTEGRATION OF PALLIATIVE CARE IN CHRONIC PEDIATRIC DISEASE
What - originally piloted in a 2.5 day retreat-style and subsequent 60-90-minute in-service trainings
Where - at selected children’s hospitals throughout the eastern US.
Why - a holistic interdisciplinary model of care that incorporates emotional, spiritual, developmental, and physical dimensionsotional, spiritual, developmental, and physical dimensions.