According to the Washington Post, May 29,2008, Johns Hopkins Institute researchers developed a human stem cell line containing the mutation associated with sickle cell anemia.
They say, "One challenge to studying blood diseases like sickle cell anemia is that blood stem cells can't be kept alive for very long in the lab, so researchers need to keep returning to patients for more cells to study."
Linzhao Cheng, an associate professor of gynecology and obstetrics, medicine and oncology, and a member of the Johns Hopkins Institute for Cell Engineering said, "Having these new cell lins available might enable some bigger projects, like screening for potential drugs."
Would you get involved in clinical trials if you thought it could help find a cure for Sickle Cell Disease?
Check out the link http://www.clinicaltrials.gov/.
There may be something you could do to help researchers.