Earlier this year, I searched for Keone to get a statement on how he was doing 15 years later. I found Keone's twitter account, and told him I was interested in catching up with him and his life after stem cell surgery. I got no response. I was disappointed, but not surprised. I've found that many people who've received stem cell treatments don't (or can't) talk about their experience (bad or good) for whatever reason.
Today, I got an email notifying the world of Keone Penn's passing. My heart sank with the news of the loss of this 27 year old young man. I was saddened for his family, who I could only imagine lived a life of sacrifice on a difficult road paved by their son.
God bless the memory of Keone Penn, friend in my head and my hero.
Time Magazine Article - The Sickle Cell Kid
CNN Article - Boy Receives First Cord Blood Transplant For Sickle Cell
Obituary - Keone Penn, 27 Medical Trailblazer