Saturday, September 22, 2012

Ryan Clark - From Sickle Cell Disease Tragedy To Triumph

While intellectuals are "writing" abstracts on how to care for people with Sickle Cell Disease, Ryan Clark is "doing" something about it.

Ryan knows first-hand the effects of loss that surround living with sickle cell. As he states, "The loss of my sister-in-law & my own life-treatening experience with sickle cell gave me insight into the intense agony people with the disease go through daily."

What Ryan is "doing" is through his foundation Cure League which is tackling sickle cell.

Their goals are:

"Work together to fund research studies and develop sickle cell disease educational outreach with end goals of:
  • Finding effective new sickle cell disease treatments
  • Identifying a cure for sickle cell disease
  • Expanding patient access to comprehensive sickle cell disease care (in PA)
  • Increasing public awareness and reducing the stigma associated with sickle cell disease.
This is putting money, time & talent where your mouth is.

You go get'um Ryan Clark & Cure League. I'm cheering you on over here and people with sickle cell disease thank you in advance.

Now, go win that Super Bowl for PA!!!!!!


Tuesday, September 4, 2012

September - Sickle Cell Disease Awareness Month (2012)

It all begins this week.

The New York Mets is sponsoring a wonderful event at Citi Field Stadium on September 8, 2012. New Yorkers will see, hear and support Sickle Cell Disease awareness through their favorite sport, baseball.

On September 15, 2012, The Hina Patel Foundation is sponsoring a Walk/Run to support Sickle Cell Awareness in California.

See pictures of this event at

The month is full of activities and events to bring awareness to sickle cell disease, as well as, much needed funds to many sickle cell disease related non-profit organizations for the services they provide.

Whatever you do this month to support Sickle Cell Disease Awareness, know that there are people suffering all over the world with no voice, no influence or power. They rely on people like you and me to SPEAK OUT, STAND UP, GIVE our TIME, TALENT & MONEY to support awareness and services for people with Sickle Cell Disease.

I don't have a lot of money, but as long as I have breath I will lend my voice, and anything else that doesn't hurt, to people living with Sickle Cell Disease.

Happy September!!!!!!

For more info about Sickle Cell Disease check out