The National Heart, Lung, Blood Institute (NHLBI) is requesting public comment on the "New" treatment guideline for adults with sickle cell disease. (due August 31, 2012)
The original document (dated 2002) tells the medical community "how to treat people with sickle cell" AND it needs to be updated.
"WE" PEOPLE WITH SICKLE CELL" NEED TO HAVE OUR VOICE, IDEAS, COMMENTS added to this important document.
Check out NHLBI website for more info on how to add your comments (or see links below)
Public Review and Comments Due: August 31, 2012
•Disposition of Public Comments
•How to Review and Comment
•Review and Comment Form, Excel (xls) file, 44 K (Form must be returned by email attachment to scd_guidelines@nhlbi.nih.gov)
Being Pro-active about "OUR" health, this OPPORTUNITY is "OUR" chance to tell doctors what "WE" think should be done to treat Adults with Sickle Cell Disease!!!!!!!!!!!!!!!!!!.
See the current Management of Sickle Cell Disease (2002) version
I submitted my comments to this important document today....they are due tomorrow!!!!
ReplyDeleteI will post some of my comments in a upcoming blog.
Thank you NHLBI for this important work!!!!