I have heard more about Sickle Cell Disease in the last six months than I have in the past five years. That is partly due to the tireless voices of SCD patients speaking out, SCD Associations not giving up the fight, and a renewed national commitment from American government agencies like National Institute of Health (NIH/NHLBI)) and Center for Disease Control (CDC).
What the focus seems to be leading toward is psycho-social help and improved care/treatment for adults with SCD. That is a good thing.
Another good thing is the 2012 calendar filling up with events, support services, conferences, and meetings about Sickle Cell and related blood disorders.
Our Voice, the voice of people living with sickle cell disease, will continue to speak out bringing information and education globally. I'm excited about the future so stay tuned. I'll post events as they come my way.
One big event coming January 15, 2012 is Celine Dion at Caesars Palace. She will play a charity show to support Children's Hospital Boston "Play Without Pain Children's Sickle Cell Benefit."
This is a wonderful thing!!!!!
Click here for ticket information & concert link
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