Under-education - Under-employment - Medical bureaucracy - Basics of Living - Depression - Antisocial - self-destructive behavior.
I agree with all of these findings. What I want to know is anyone really helping people with sickle cell?
I know, nothing is free.
- Are people with sickle cell disease really getting help with Social Security disability red-tape, disabled employee rights assistance, or disabled student rights assistance?
- People with sickle cell disease in some cases Have TO work. Who helps them when they get fired for taking off work sick?
- People with sickle cell disease in some cases CAN’T work. How/what/where do they get SSA application help?
- People with sickle cell disease in some cases are depressed, lonely, in pain and live alone. Who is really giving “hands on” help?
I have more questions than answers.
I looked all over the web for some examples of people doing (hands-on) things for people with SCD and I found a few. I will profile these people/organizations in future blogs.