Friday, December 12, 2008

This Ain't No Pity Party

I was reviewing my blog and I kinda felt the “woe is me” vibe coming from my words. That is the farthest from what I feel, think or believe. I have Sickle Cell Disease, like millions of others. We all suffer in silence because no one can feel our pain for us. We all live past this pain. We all work, play, sing, and dance despite our condition. Heck, a few of us even do great things with our lives (shout out to T-Boz from TLC). So, this blog is not a pity party, a cry to the blues about my sad story, or even an indirect way of getting compassion. I live on anyway!

What this blog is is a light shining in the dark. The darkness of ignorance and suffering. This blog is a way to document the plight of people living with Sickle Cell Disease and offer an “inside look” at our suffering.

Do we want compassion? Yes. A warm hand on our throbbing legs is greatly appreciated. Do we want pity? Hell no! We lay in our hospital beds with IVs of glucose and blood flowing and all we want is a smile, our hands held, and your love. Thank you very much.


  1. Anonymous9:01 PM

    Ok, little sister. Here is a warm hand on your throbbing legs \|||/. A smile :-). me holding your hands ((\|||/)) and my love xoxoxoxoxoxoxoxoxxoxoxoxoxoxoxoxoxoxoxoxoxooxoxoxoxox.

    What the world needs now is love... and knowledge helps a ton, yes?

    Love you, little sister, janice aka jenny, aka therealpinkfloyd

    etc, etc, etc.