The voice of people living with Sickle Cell Disease. Information, education and communication, finally, with our voice.
Showing posts with label Management of Sickle Cell. Show all posts
Showing posts with label Management of Sickle Cell. Show all posts
Monday, April 28, 2014
Health And Human Services Funding For Sickle Cell
The US Department of Health And Human Services is offering grant funding for Sickle Cell Treatment Demonstration Centers in the United States.
HRSA Grant 14-078 expects to make four cooperative agreement awards (no more than one in any HHS region). Awards will be as much as $850,000 per year for the 3-year project period.
If you need help with the application process attend a free webinar on May 12, 2014 3pm est.
Applications accepted until May 27, 2014. check out Health Resources Services Administration (HRSA) website for details www.hrsa.gov
Friday, August 10, 2012
NHLBI Seeks Public Comment on "Draft" 2012 Sickle Cell Management Treatment Guideline


The National Heart, Lung, Blood Institute (NHLBI) is requesting public comment on the "New" treatment guideline for adults with sickle cell disease. (due August 31, 2012)
The original document (dated 2002) tells the medical community "how to treat people with sickle cell" AND it needs to be updated.
"WE" PEOPLE WITH SICKLE CELL" NEED TO HAVE OUR VOICE, IDEAS, COMMENTS added to this important document.
Check out NHLBI website for more info on how to add your comments (or see links below)
Public Review and Comments Due: August 31, 2012
•Disposition of Public Comments
•How to Review and Comment
•Review and Comment Form, Excel (xls) file, 44 K (Form must be returned by email attachment to scd_guidelines@nhlbi.nih.gov)
Being Pro-active about "OUR" health, this OPPORTUNITY is "OUR" chance to tell doctors what "WE" think should be done to treat Adults with Sickle Cell Disease!!!!!!!!!!!!!!!!!!.
See the current Management of Sickle Cell Disease (2002) version
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