Sickle Cell & Bioethics - What is it?

At the Johns Hopkins Berman Institute of Bioethics there is a vision of hope.

Specific to Sickle Cell, there is the VISION OF HOPE: INTEGRATION OF PALLIATIVE CARE IN CHRONIC PEDIATRIC DISEASE

The Vision of Hope Project builds on the curriculum developed by the Initiative for Pediatric Palliative Care (IPPC) to help facilitate the learning of practices in providing comprehensive and integrated care for adolescents and their families.

What - originally piloted in a 2.5 day retreat-style and subsequent 60-90-minute in-service trainings

Where - at selected children’s hospitals throughout the eastern US.

Why - a holistic interdisciplinary model of care that incorporates emotional, spiritual, developmental, and physical dimensionsotional, spiritual, developmental, and physical dimensions.