The voice of people living with Sickle Cell Disease. Information, education and communication, finally, with our voice.
Thursday, March 27, 2014
Understanding Sickle Cell Pain
Samir K. Ballas, MD is a professor of medicine and pediatrics at Thomas Jefferson University in Philadelphia and honorary staff member of HEMORIO, the Hematology Institute in Rio de Janeiro. He formerly directed the Adult Sickle Cell Program of the Commonwealth of Pennsylvania for the Philadelphia Region.
Dr. Ballas knows blood and he also knows sickle cell disease. Who better than he to write a book about sickle cell pain.
His new book Sickle Cell Pain , March 2014 is a 752-page book that links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease.
The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
The world is getting smarter about sickle cell disease thanks to people like Dr. Ballas. Cheers to you for this very important life's work!
Saturday, March 8, 2014
Support Students With Sickle Cell
The Center for Disease Control (CDC) offer tips for parents and care givers of kids with sickle cell. We need everyone on the team; doctors, teachers, and school administrators. Check out this flyer for more information: CDC Tips for Supporting Students
Also, see CDC's - Sickle Cell Disease link
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